tag:blogger.com,1999:blog-7529378731102492473.comments2023-11-15T20:23:58.478-08:00The Lesion JournalsChristie @ the Lesion Journalshttp://www.blogger.com/profile/06633600406115639537noreply@blogger.comBlogger360125tag:blogger.com,1999:blog-7529378731102492473.post-40463095810512100032017-04-15T09:01:47.694-07:002017-04-15T09:01:47.694-07:00Hey there. Sorry to hear of the struggles you'...Hey there. Sorry to hear of the struggles you've recently encountered. And, I certainly hope at the time of this reply, it has gotten a bit better this week. Have you spoken with a doctor about the weight loss? Or, maybe a nutritionist? I wonder if that would help maintain the levels you want. Regardless, I sincerely hope you're doing okay. Best, C.Christie @ the Lesion Journalshttps://www.blogger.com/profile/06633600406115639537noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-80255253780284296232017-04-07T10:36:20.723-07:002017-04-07T10:36:20.723-07:00I was beginning to think I was the only one that n...I was beginning to think I was the only one that noticed the weight change. I was recently diagnosed, March 31 with MS,RA and Osteoarthritis but have been dealing with symptoms for over 14 yrs. In the last two yrs it's hit me pretty hard and gone untreated, as insurance was not an option or available. It's been in the last year that I've lost weight without trying. But the MS is also affecting my diverticulitis. Some days I have no appetite and others I can't find enough to eat. People noticing is definitely a double edged blade. We need their understanding when we have bad days but don't want to be seen as sickly either. Anonymoushttps://www.blogger.com/profile/10383179361151238846noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-46069779501282912042016-10-25T06:16:55.888-07:002016-10-25T06:16:55.888-07:00Hey - thanks so much for stopping by. The weight d...Hey - thanks so much for stopping by. The weight drop is certainly weird, right? Hope this note finds that you are feeing good, as best as it is possible. Take care, ChristieChristie @ the Lesion Journalshttps://www.blogger.com/profile/06633600406115639537noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-63454704862645504182016-10-22T21:35:57.017-07:002016-10-22T21:35:57.017-07:00thank you for this blog....was diagnosed 3 years a...thank you for this blog....was diagnosed 3 years ago...have recently dropped from a size 12 to a size 6 and even these are starting to get too big. My best friend who has always been tiny started saying that I am getting smaller than her. S he actually seems a bit upset about it. I'm not doing anything different. I used to love hiking at local state park, but the trails are too challenging when I can't feel my feet. I thought I would gain weight when the symptoms start, but the opposite has happened. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-21347230288267758692016-04-20T05:56:59.383-07:002016-04-20T05:56:59.383-07:00So glad you stopped by and it's nice to meet y...So glad you stopped by and it's nice to meet you. It definitely can be overwhelming and don't forget your positive spirit. Take care, ChristieChristie @ the Lesion Journalshttps://www.blogger.com/profile/06633600406115639537noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-68294053490178963112016-04-10T14:02:15.995-07:002016-04-10T14:02:15.995-07:00Hi Christie
I just came across this post and abs...Hi Christie <br /><br />I just came across this post and absolutely love it. It is just what I needed to read today!! I was diagnosed three weeks ago and have been able to stay positive most of the time, but sometimes it still gets overwhelming. <br /><br />I hope you are feeling okay and that you're still loving those things that you enjoy. Thanks for the positivity x Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-53297020130393675062016-02-18T06:10:04.162-08:002016-02-18T06:10:04.162-08:00I, too, thought the numbness I felt during the ons...I, too, thought the numbness I felt during the onslaught of a MS diagnosis was due to a pinched nerve. Vitamin D is a big deal and I hoe that you taking it will help. Stop by anytime! Take care, ChristieChristie @ the Lesion Journalshttps://www.blogger.com/profile/06633600406115639537noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-7808134548951819032016-02-18T06:07:21.708-08:002016-02-18T06:07:21.708-08:00Thanks Nathan. We are really looking forward to al...Thanks Nathan. We are really looking forward to all of the great things that will come out of the initiative. Take care and thanks for stopping by the blog. Best to your mom. -ChristieChristie @ the Lesion Journalshttps://www.blogger.com/profile/06633600406115639537noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-14550739043736576862016-02-18T06:06:30.759-08:002016-02-18T06:06:30.759-08:00Hey Rachel - I would love to help raise awareness ...Hey Rachel - I would love to help raise awareness about the 'MS Reporters' project (I love what shiftms does!). Stay tuned as I will craft either a few Tweets or a post here on the blog. Best, ChristieChristie @ the Lesion Journalshttps://www.blogger.com/profile/06633600406115639537noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-9496894894903858622016-02-18T06:03:13.630-08:002016-02-18T06:03:13.630-08:00Thanks so much for checking out the "behind-t...Thanks so much for checking out the "behind-the-scenes" of this project. I will be sharing more info once it's go live! Take care, ChristieChristie @ the Lesion Journalshttps://www.blogger.com/profile/06633600406115639537noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-71137896534695448542016-02-03T10:41:22.004-08:002016-02-03T10:41:22.004-08:00Thanks for this I'll check it out. My mom has ...Thanks for this I'll check it out. My mom has had MS for quite a long time and in always looking into it in hopes to help her get more out of her days. Thanks again. Nathan isaachttp://www.nathanisaac.ca/my-story/possible-cure-for-ms/noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-54214263585180199742016-01-24T08:15:27.151-08:002016-01-24T08:15:27.151-08:00Hi Christie, it's really exciting to read abou...Hi Christie, it's really exciting to read about this initiative, this sounds like it could really help to gather powerful data that will lead us further along the path to a cure for MS. I am doing some work for the shift.ms website, which is a British website for people with MS that creates a social network between us. <br /><br />They have a project called the 'MS Reporters project', where they train people with MS to become 'citizen journalists' and conduct interviews with MS experts about issues raised by people with MS. They then publish videos of these interviews to their website here: http://shift.ms/msreporters/ so we can all share in the learning. It would be great if you could raise awareness of the project to spread the knowledge even further - and people can submit more questions to be asked through the website, too!<br /><br />Take care,<br />RachelEel Ladyhttps://www.blogger.com/profile/02254276919631882886noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-34246604407788518952015-12-09T15:43:50.821-08:002015-12-09T15:43:50.821-08:00I was just diagnosed in March this year. I did no...I was just diagnosed in March this year. I did not believe the diagnosis initially as I thought I had a pinched nerve (oh how I wish I had a pinched nerve). The neurologist suggested I get on Vitamin D, so I asked...is my vitamin D level low? Come to find out I was severely depleted. I wonder if I had not been low on D if my body would not have attached itself! Anyway, I am on it now and monitoring frequently. Great post!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-80288091390262645502015-04-08T05:53:59.168-07:002015-04-08T05:53:59.168-07:00Hey Julie. Nice to meet you and thanks for stoppin...Hey Julie. Nice to meet you and thanks for stopping by the blog. I think you're right, it's gotta be the combination of diet, drugs, and exercise. Maybe even the MS itself? I'm not sure. Nonetheless, people's reactions are pretty interesting. Like you, I heard a wide variety of them, also quickly changing the subject. I hope you're feeling okay. Best always, ChristieChristie @ the Lesion Journalshttps://www.blogger.com/profile/06633600406115639537noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-76067766713061187972015-04-08T03:54:55.136-07:002015-04-08T03:54:55.136-07:00So glad to see this. I was diagnosed in September ...So glad to see this. I was diagnosed in September 2013, started Aubagio in December 2013, and have lost 28 pounds, going from a size 8 to 4. I also eat more healthily and exercise, but I was always quite healthy. My doctors aren't worried. What I've found most difficult - and shocking - are the comments from friends, colleagues, cafe owners etc. I would NEVER comment on someone's weight, never mind tell them they looked better before or have 'gone too far'. As most people don't know the reason, I tell them it wasn't by choice and change the subject. Hoping it stabilises, as I'm really too thin for my taste now, although still a healthy BMI. Never thought of it as an MS symptom, but maybe it's a combination of diet, drugs, exercise?Julienoreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-60490916726164626822015-03-30T19:26:40.169-07:002015-03-30T19:26:40.169-07:00Do you have a room for me in SD? I'd visit in ...Do you have a room for me in SD? I'd visit in a heartbeat. I love it there!<br /><br />How good of you to post this public service announcement about Vitamin D. So important. I did see my neurologist a few years ago and now I take the right dosage every day. Cathyhttps://www.blogger.com/profile/01530651626467011526noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-22523641897375143642015-02-15T08:14:09.085-08:002015-02-15T08:14:09.085-08:00we welcome the data from everyone - if you do not ...we welcome the data from everyone - if you do not have MS you will still see the same questions as the people with MS EXCEPT when were you diagnosed and what type of MS do you have. We are also open to people outside of the United States. So, please join us and share you data. There may be a clue in why you don't have MS and your friend does. We never know what will be uncovered.<br />Anonymoushttps://www.blogger.com/profile/17029506736591787478noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-15056651072241841692015-02-15T07:43:03.299-08:002015-02-15T07:43:03.299-08:00Friends: while the goal of 20,000 is 20,000 people...Friends: while the goal of 20,000 is 20,000 people with MS, we welcome everyone and research will benefit greatly for having people w/out MS enroll and participate as controls. Hope this additional info helps. Take care, ChristieChristie @ the Lesion Journalshttps://www.blogger.com/profile/06633600406115639537noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-44808367017768341632015-02-15T07:13:28.159-08:002015-02-15T07:13:28.159-08:00Hey Stephanie. I am actually not entirely sure and...Hey Stephanie. I am actually not entirely sure and will default your question to the iConquerMS team. Stay tuned on our reply. Take care, Christie. Christie @ the Lesion Journalshttps://www.blogger.com/profile/06633600406115639537noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-59694594509021475442015-02-15T07:12:01.483-08:002015-02-15T07:12:01.483-08:00Hey Jennie. Yes, fatigue is the worst and can be s...Hey Jennie. Yes, fatigue is the worst and can be so challenging to overcome. Hope that today it subsided a bit. Best, ChristieChristie @ the Lesion Journalshttps://www.blogger.com/profile/06633600406115639537noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-88959094907782897802015-02-04T14:09:51.568-08:002015-02-04T14:09:51.568-08:00So happy that I found you. I have not been diagnos...So happy that I found you. I have not been diagnosed with MS yet. It is a waiting game for me. I had my first bout with optic neuritis in 2009 and my symptoms have really kicked into overdrive since then. Since 2012, I have been able to work because of the fatigue. I completely feel the same way in which you have stated. Too fatigued to do anything but my mind has other ideas. Thank you for your blog and when you get a minute, please check out mine. The blog has helped me so much. Take care!<br />Jennie<br />www.jenndsblog.blogspot.comJennhttps://www.blogger.com/profile/07370888896429822808noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-77730422758960850252015-01-29T07:56:51.303-08:002015-01-29T07:56:51.303-08:00Do you have to have MS yourself to join? A dear fr...Do you have to have MS yourself to join? A dear friend of mine was recently diagnosed, and I want to help.StephanieBnoreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-1224696545460224482014-12-13T04:01:28.334-08:002014-12-13T04:01:28.334-08:00I think we should have party hats, too, This is t...I think we should have party hats, too, This is the type of venture that calls for lots of celebration and noise to get things rolling. I am so excited to be part of this Big Data and hope everyone gets on it today. The sooner we tell our individual history, the quicker we can shape criticial research. Thanks for sharing this good news!Anonymoushttps://www.blogger.com/profile/17029506736591787478noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-72623262906030593962014-11-01T21:05:41.596-07:002014-11-01T21:05:41.596-07:00Hi there & nice to meet you. Stop by anytime, ...Hi there & nice to meet you. Stop by anytime, would love to hear how you're doing. Best, ChristieChristie @ the Lesion Journalshttps://www.blogger.com/profile/06633600406115639537noreply@blogger.comtag:blogger.com,1999:blog-7529378731102492473.post-70568463635909672962014-11-01T21:04:11.097-07:002014-11-01T21:04:11.097-07:00This comment has been removed by the author.Christie @ the Lesion Journalshttps://www.blogger.com/profile/06633600406115639537noreply@blogger.com