Hi Everyone,
I just came across this post via facebook and thought I would share. I don't hear these things often from my loved ones but I suspect other MSers do. No bueno. When someone close to you says these kinds of things, it can hurt.
*10 THINGS YOU (DO NOT) SAY TO SOMEONE WHO HAS MULTIPLE SCLEROSIS*
10. MUST BE NICE TO SLEEP ALL DAY
9. YOU'RE LUCKY YOU DON'T HAVE TO WORK
8. I CAN RELATE
7. JUST TAKE SOMETHING
6. JUST TRY HARDER
5. JUST BE POSITIVE
4. YOU JUST WANT ATTENTION
3. IT'S ALL IN YOUR HEAD
2. IT COULD BE WORSE
1. BUT YOU LOOK (GOOD)
Next week is MS Awareness Week. Give your MSer a hug.
Best,
Christie
Wednesday, March 9, 2011
10 Things You (Do Not) Say to Someone Who Has Multiple Sclerosis
Why, hello there! My name is Christie and I am a number crunching photographer who loves riding my bike really, really fast! And, I happen to live with MS and write about it on this blog, the Lesion Journals. You can also find me on Twitter @lesionjournals, on Facebook at thelesionjournals, and on http://multiplesclerosis.net. Tell a friend!
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i have heard some of these things... and you're right, it does hurt. i think the thing that bothers me the most is when i hear it could be worse (yes, i know that) and be positive (yeah right), or when someone asks about how i'm feeling and then take my symptoms and make them their own... or compare them to their own... no comparison .... i don't discount anyone else not feeling well and they deserve the empathy when they are tired or have a headache or what have you... but don't compare...
ReplyDeleteI have answers to all those remarks. I don't let people bug me.
ReplyDelete10.Oh ya, sleeping my life away is a goal I set in my early years.
9.Yes, living below the poverty line is a lot of fun.
8.Oh you can? So sorry to hear about your MS diagnosis.
7.Any suggestions?
6.I am trying really hard right now...not to punch you in the head.
5.I am positive I have MS.
4.No, but a little empathy wouldn't hurt.
3.Oh course it's all in my head, it's a neurological disease you a(*hole.
2.It could be better.
1.Ya, but you should see my brain!
Hey Christie! We all love you so much. Ella wants to Skype with you, Anna and the cats.
ReplyDeleteKaren is funny.