Sunday, September 7, 2014

Clouds come floating in

“Clouds come floating into my life, no longer to carry rain or usher storm, but to add color to my sunset sky.” - Rabindranath Tagore


I just love this quote because it serves as a great reminder that, yes, the clouds will roll in, bringing in the darkness that MS sometimes carries, yet, somehow, through the storm, there is something good and positive to look for.

Dwelling on all of the bad stuff that may come with an MS diagnosis will really drive us crazy as we chant “why me, why me.” Some things are not meant to be understood and we should try to move on. I do this by focusing on doing things that I enjoy. Try as I might, it does work.

The stuff I love includes riding my bicycle really, really fast, taking pictures, reading, writing, planning a trip, wandering and exploring, gardening, laughing, watching movies and all kinds of other goodies. In doing this, I forget for a few moments, hours or days, that I am someone living with Multiple Sclerosis. Any darkness hovering over me lifts and I move on, enjoying the gorgeous colors of life. Corny, I know. But, it works.

You see, by focusing on doing the things I enjoy, the burning sensation in my legs drifts away a little bit, the numbing and pain seemingly weakens. The fatigue may stay awhile but when focused on doing things I enjoy, like watching an awesome movie, that feeling of “I hit a brick wall” diminishes. Do my MS symptoms go away? Nah. They simply fall to the background as I focus on doing stuff that deters me from constantly thinking about on the numbing and pain that I always feel.

Receiving an MS diagnosis can be devastating. No doubt. It brings hardships that can be very difficult to endure. I think lessening the load is important as we try to remember that there is so much great stuff in life that can really bring us a lot of joy.

How about you? What are some things you enjoy doing? To help brighten your days and help you dwell a little bit less on MS symptoms? Would love to hear from you.

Best,
Christie

Wednesday, September 3, 2014

What does an MSer need to know about financial stability? A lot

I was just made aware of an upcoming financial webinar series, "Financial Wellness Webinar Series", designed by the National Disability Institute, for those of us living with Multiple Sclerosis. This looks like a great resource with a focus on taxes, employment, social security and credit. No doubt we can all use financial advice from time to time and this is a great way to learn more about planning and maintaining financial stability. 


Did you know that a lot of MSers do not plan for our financial future? 

Based on a 2011 online survey of 3,000 MSers, 67% reported that their financial position declined after getting an MS diagnosis and 74% noted that they did not use financial planning programs/strategies to manage money. Plus, based on a very recent report by the National Disability Institute, 78% of people with disabilities had trouble making ends meet vs. 56% of people without disabilities.

All good reasons to register for the 4 free webinars that offer advice, tools and information to overcome financial challenges that are unique to us living with Multiple Sclerosis. Check out the schedule below and I'll see you there!
Register Today! www.realeconomicimpact.org/FinancialWellness 

Best always,
Christie

Sources:

Wednesday, August 27, 2014

Working It Out

Hello, hello! 

Below is another great video from our friends over at Shift.ms that talks about the challenges of MS in the workplace. They put together a great list of tips, too. Have a watch.

Take care!

Christie



Wednesday, August 13, 2014

Follow my blog with Bloglovin

Good day all. I'm just playing around with this post as I just joined the Bloglovin community. Pay no mind unless you'd like to leave word and say 'hello, hello'. Hugs and hope y'all are feeling okay, as okay as it is possible. 

Follow my blog with Bloglovin

Sunday, August 3, 2014

Without you is something I cannot imagine

Hand Heart
(c) Claire Louise at www.puppyfat.com
Dear Friends,

Today is National Friendship Day and I want to celebrate you as I truly value our relationship. You are all important to me as we navigate, together, the journey of living with this intense neurological disease, Multiple Sclerosis. 

This blog started off as I place for me to express the emotions and feelings that came up for me during this “new normal”, as a sort of cathartic process. Turns out, I made a lot of new friends along the way, ones for whom I am truly grateful. 

So, thank you! Thank you for the love, support and hugs, as the months and years following my MS diagnosis have been challenging, scary, funny, frustrating, inspirational, adventurous, creative, interesting and rewarding. Without you is something I cannot imagine. 

Thanks for being there for me and I wish you all the best, always. 

Happy Friendship Day!

Hugs,
Christie

Saturday, June 28, 2014

Top 5 Reasons Why MS SoftServe Rocks


Coming soon to a computer near you - MS SoftServe! In the event that you haven’t heard about the amazing work my buddy Amy Gurowitz is doing, here goes. Amy is running things over at http://www.mssoftserve.org and you’ll really be impressed. This will be the first website of its kind. Unlike any existing site with information, this site will be a completely customizable- individualized space for people to learn what they want, when they want about their unique version of Multiple Sclerosis.

Without further ado…

Here are the top 5 reasons why MS SoftServe rocks:
  1. MS SoftServe will empower. After all, its main mission is to enable MSers to …”successfully cope with their disease through customized, online, active learning on a special website that meets their unique needs for learning.”
  2. MS SoftServe will allow folks to share. The site will serve as a space for MSers to teach others about their version of MS without unnecessary information. This is key, right? Since all of us MSers live with a varying version of MS.
  3. MS SoftServe is led by an amazing woman. Amy’s nature is to educate, soothe and speak to MSers with a compassionate voice, sprinkled with a bit of humor. She works tirelessly at MS SoftServe, to make life easier for those of us living with Multiple Sclerosis.
  4. MS SoftServe benefits from an esteemed Board of Directors. The Board is a group of doctors, bloggers, writers, web designers, software developers, educators, filmmakers, social workers and radio show hosts... All of whom care about, care for or are people living with MS.  Did you know that actor Robbie Benson is on the Board? Pretty cool.
  5. MS SoftServe will ultimately change how we learn about health on the web. We believe it will become a trusted resource for MSers. ‘Nuff said.

I’m on the Board of Directors for http://www.mssoftserve.org and you can imagine that we are all super excited to be a part of this landmark website. So, please join me in supporting MS SoftServe. Donate, Volunteer and/or Spread the word (here).

Oh, and do check out all of the videos – they’re very well done and you’ll meet everyone involved in this uber important project. 


Best always,

Christie

Monday, June 16, 2014

Made Strong

I recently met Dominick who is running things over at Made Strong, an apparel and accessories company with an empowering message. Not only are the shirts great, a portion of the proceeds goes towards our fight against Multiple Sclerosis. He jotted up the words below to describe Made Strong’s mission and inspiration. And, be sure to visit his shop (link below). I invited him to jot up a few words about Made Strong so be sure to have a read through his guest post below.  
Wearing my Made Strong bracelet during a ride - thanks!
(c) cgermans photography 2014
From Dominick, Made Strong, Inc.:
Though I don't have MS, the fight against it became a personal one. Here's why:
I was making designs for various causes and donating portions of the shirts sold to charity. I designed the Made Strong shirt for multiple sclerosis awareness. Soon after I started selling the shirt, I quickly became immersed in the MS community. I started hearing more and more stories of strong individuals who were battling MS. I became pretty close to some of my customers. I was incredibly grateful that this mantra could inspire someone in even the smallest way.
At the time, the name of the company was Nico Apparel but I changed it to Made Strong after receiving some really powerful messages from my customers.
I received a video from an individual with MS wearing a Made Strong sweatshirt. In the video she is walking with a cane for a few steps, she then drops the cane and continues to walk with no assistance. Another time, I got this email from a customer: "I choose to view life's challenges as opportunities. I let adversity strengthen my spirit. My body has gone through hell but my spirit is unbreakable. This is what Made Strong means to me."
video

I built madestrong.org to inspire individuals by selling cause focused apparel and accessories with inspiring messages. We spread awareness and we donate 10% of our profits to charity. So far we’ve donated just under $2.5K to the National MS Society and Race to Erase MS.
We are a customer obsessed little company. We do everything from customized apparel to helping people with medical bills. We’d love to have you be part of our little community…follow us on Facebook (Facebook.com/madestrongllc).
Stay strong.

Thanks Dominick - keep up the good fight! You rock. P.S. if you would like more info about Race to Erase MS, you can check them out (here) and (here). Race to Erase MS is doing fine work with their dedication to the treatment and eventual cure of Multiple Sclerosis. Thanks!

Best always,
Christie

You Might Also Like: