Wednesday, January 18, 2017

Woof, meow, tweet…the benefits of having pets in our MS life

Dog, cat, chinchilla, hamster, ferret, fish, bearded dragon, parakeet, pig, monkey – whatever your choice, pets really make us feel good, better even, as we live with chronic illness and disability. Not only can they provide physical assistance, they also warm our hearts and make living with MS a bit easier more >>

This cutie is amazing at making me feel
better when those bad days show up

Sunday, February 14, 2016

Photo shoot highlighting that Multiple Sclerosis is only part of the "Big Picture"

What great fun! This past week I participated in a photo shoot for Health Central’s Big Picture project. Have you heard of this? It’s a very cool, Humans of NY-ish approach to showcase that living with chronic illness is only part of the ‘bigger picture’ of our lives. In my case, we snapped pics of me riding my bicycle, one of my hobbies (and there are plenty) that I am really passionate about. My health story will be highlighted which is that I try my best to live my life by doing things that I really love, including riding my bike as fast as I can, despite Multiple Sclerosis.

The morning of our photo shoot, we met photographer Kent Mercurio at a little coffee shop in sunny Coronado, California. We chatted over treats and coffee while we got to know each other. We talked about a lot of stuff including the diagnosis process of Multiple Sclerosis, my journey living with the disease, and, of course, cycling and photography, my two favorite hobbies. Our chat was really nice because it set a relaxed and friendly tone for our photo shoot. Kent is a really nice guy.

The shoot consisted of several shots of me riding (I was really careful not to run Kent over in the process – we had a couple of close calls!), posing with my bike, and a few contemplative portraits. We even managed to squeeze in a few shots of Luca the Sock Monkey who is our mascot for Team Luca in the annual Bike MS Bay to Bay event. Kent shot with sunny San Diego as a backdrop – the bay, the palm trees, sail boats, San Diego city skyline - I can’t wait to see how the photos turned out.

Sunny San Diego!

Kent capturing my love for cycling

Close up! 

Great back drop of sunny San Diego

Luca the Sock Monkey! 
The photo shoot also gave me the motivation to hop back in the saddle after a wee break. Last year was a tough one for me personally and I did what I often do when I am stressed or face life-altering challenges – I put the bike aside. This photo shoot turned things around for me and cycling around Coronado that day helped me remember that, yes, I have a serious neurological disease, but, you know what? I choose to ride on. I choose to do the things that I love. I choose to live a happy life despite it.

P.S. a HUGE thank you to the team at Remedy Health Media, Health Central, and Kent Mercurio for giving me this opportunity and inspiring me to make 2016 the year of cycling, despite living with Multiple Sclerosis – you guys rock!

Take care,

Christie

For more information, please check out the links below:

Tuesday, September 1, 2015

7 great things accomplished by patient powered iConquerMS

I am so delighted to share that the iConquerMS initiative has made a lot of progress these last few months. Membership keeps rising and a lot has been achieved in a short time. What a great team to be a part of!

The focus continues to be facilitating research on stuff that matters most to us, folks living with Multiple Sclerosis. And, it involves MSers across the entire process: idea building, collaboration, protocol development, project results, and sharing of final research results.  Pretty cool, right?


So, I thought I would share some of the recent highlights. Here are seven great things accomplished by iConquerMS so far:
  1. Launched the new data collection and patient engagement portal
  2. Registered over 2,250 people living with Multiple Sclerosis
  3. Collected a lot of health data – from about ½ of those registered
  4. Garnered support from MS clinics, neurologists, MS nurses, MS advocacy organizations, pharmaceutical companies, and collaborators
  5.  Created its first research project that will focus on how folks with MS get insurance coverage
  6. Collaborated with PPRN (patient powered research network) on a study proposal to examine the effects of depression, anxiety, and other mental health issues in folks with Multiple Sclerosis
  7. Planned four ‘Research Studios’ events, which will bring together small groups of MSers and researchers to brainstorm on research topics. These are scheduled to launch this fall 
Of course that’s not all as the full list of accomplishments is much longer. Also, several research projects are underway, all at different stages of planning and ideas keep coming in from those MSers registered - teams are very busy!

iConquerMS puts people with Multiple Sclerosis at the center of research in the fight against MS. We’d love for you to be a part of this so please join us today by clicking on the link here: https://www.iconquerms.org .

Take care,

Christie

Friday, May 22, 2015

Perhaps I am stronger than I think

Perhaps I am stronger than I think. Thomas Merton

Tuesday, May 19, 2015

The day I met Jack Osbourne

A couple of weeks ago, we had the honor of traveling up to LA to attend the Race to Erase MS Spring Forum and Expo on behalf of iConquerMS. We drove up the night before and stayed in the same hotel where the 22nd Annual Race to Erase MS Gala was happening.

Everything was a buzz as guests arrived for the Gala that night. With the hope to catch a glimpse of some Hollywood stars, we hung out in the hotel lobby bar to watch the action. As you might guess, the excited noise of laughter, chatter, music, and clinking of glasses filled the hallways.

We saw a few stars come through the crowded lobby and head out to the orange carpet: Lea Thompson (of Back to the Future fame), Anne Heche, who later introduced the live auction which included a gorgeous 2015 Aston Martin V8 Vintage GT (vroom, vroom!), Ne-Yo the rapper (truth be told, we didn’t really know who he was, just got the sense that he was famous due to the patrol around him), Rumer Willis, and, Tommy Hilfiger, who was the event’s Honoree. Eventually, we tried to sneak down to the orange carpet area but it was impossible to see anything as the Osbournes had just arrived when we did. Flash bulbs and people everywhere!

We later learned that over 1,000 people attended the event with tickets ranging from $1,000 - $2,500. The car? It went for $150,000! All together, the event raised $1.7M with proceeds going to MS research and therapies. That’s pretty awesome.

The next day was our chance to talk about the importance of iConquerMS and meet so many wonderful people. This includes Nancy Davis, the founder of charity event and Race to Erase MS, and Jack Osbourne, who was on the Spring MS Forum panel. Later, I pretty much chased Jack down like a crazy person as I caught him briskly walking through the hall but he was really, really cool about it, especially once I introduced myself as a fellow MSer. He was nice to snap a photo with me and kept it real as I thanked him for being so honest on the panel about his positive attitude despite bouts of occasional depression.

Here are some shots of the event and notes about the pictures. Starting on the bottom right corner going clockwise and finishing in the center square:
  1. Anna on the orange carpet at the Race to Erase MS Gala
  2. The amazing panel, including Nancy Davis and Jack Osbourne, who covered topics such as the latest therapies for MS and engaged in an open dialogue about depression. Did you know that 50% of MSers are clinically depressed? And that the third cause of death with MSers is suicide, due to depression? We need to talk about this more
  3. Anna has the power to conquer MS – yeah!
  4. At the iConquerMS table, spreading the good word
  5. Me and Jack O. I appreciated his candidness during the panel discussion of depression amongst MSers. He talked about times when he enters the “jar of shadows” yet encouraged everyone to be positive and live a healthy lifestyle
  6. On the orange carpet with my limited edition Top and Derby Chatfield walking stick in MS orange
  7. Surrounded by MS orange balloons at the Spring MS Forum and Expo
  8. I, too, have the power to conquer MS
  9. We were pretty excited to step out onto the orange carpet although all the stars already left the area by the time we snapped this! (center photo)


It’s fairly obvious that we had a great time and look forward to next year. Who knows? Maybe you will see the two of us actually walk the orange carpet, amongst the stars, as we all work towards curing Multiple Sclerosis.

If interested in supporting Race to Erase MS via the “Orange you Happy to Erase MS” campaign this month, check it out here: http://www.erasems.org/may-ms-awareness-campaign/. Proceeds of the campaign go towards some of the nation’s top MS research centers

To join the iConquerMS initiative, register on the site here: https://www.iconquerms.org/. Submit your ideas, information, and become part of the heart and soul of iConquerMS.

Take care everyone,


Christie

Sunday, April 12, 2015

LA artist raises awareness about MS through gorgeous mural

I recently came across this CBS report that highlights LA artist Lydia Emily. Lydia created this amazing mural in downtown LA, hoping to spread awareness about living with Multiple Sclerosis.

Have a watch and be prepared to be inspired!

Sunday, April 5, 2015

You’re invited to share your MS inspired tattoo with Healthline.com

Getting inked can be a powerful reminder that you are stronger than your MS, and a great way to raise awareness. While I don’t have a tattoo myself (reason being is that I cannot decide for the life of me what to ink myself with – I am forever contemplating the perfect design), I think what our friends over at Healthline are doing is pretty cool. They are hosting the “My MS tattoo” campaign and are looking for tattoos inspired by your fight with MS.


Here’s how to participate:
  • Send a clear photo of your tattoo (at least 285x285 in .jpg or .png format) to nlascurain@healthline.com with the subject line “My MS tattoo” by April 17, 2015
  • In 90 words or less, describe the inspiration behind your tattoo
  • Please identify if you'd like your name published or not
  • Healthline will then publish them and share with their Facebook community

When describing the inspiration behind your tattoo, think about these questions: What does it mean to you? Why did you decide to get the tattoo? Was there anything special that motivated the design?

Have fun and I look forward to seeing your MS inspired tattoos out on Healthline.com. Perhaps seeing yours will inspire me to finally decide on what my tattoo should look like! 

Take care,

Christie

P.S. check out these tattoos, inspired by MSers journey and fight against Multiple Sclerosis: 


Sunday, March 29, 2015

Call your neurologist on Monday morning and ask for guidance on Vitamin D

There was a common theme at a couple of events I attended recently yet what I heard was nothing new to us, especially if you are reading the news, set up on Google Alerts for Multiple Sclerosis, and hanging out in social media chat rooms. What’s the advice from our favorite neurologists, professors, nurses, MSers, and friends of the MS community?

If you live with MS and are not already taking the "sunshine vitamin", call your neurologist on Monday morning and ask for guidance on Vitamin D.

The benefits of the sunshine vitamin have been talked about for a while and if you cannot relocate to sunny San Diego to absorb more sun rays, it is certainly worthwhile having a conversation with your neurologist about how much Vitamin D to take. Me? I take 50,000 U every week, as prescribed by my awesome neurologist. He monitors me closely and we talk about Vitamin D each time we visit together.

If you cannot relocate to sunny San Diego to
absorb more sun rays, call your neurologist
to talk about the "sunshine vitamin"
More and more research is pointing to the fact that low levels of Vitamin D in our blood is a risk factor for developing MS. Conversely, studies show that in MSers, high levels of Vitamin D may be linked to lower chances of attacks and less severe disability[i]. This sounds amazing to me!

Additionally, it has been suggested that Vitamin D deficiency may impact bone health, as MSers are more prone to osteoporosis. Another concern? MS associated weakness may be associated with low levels of Vitamin D. Also, there’s some talk that low levels of Vitamin D could worsen MS disease process.

I got these bits of info from the “Vitamin D and MS: Implications for Clinical Practice bulletin put out by Allen C. Bowling, MD, PhD via the National Multiple Sclerosis Society (NMSS). Have a read as it contains great info about Vitamin D deficiency, the effects on MS, costs associated with the “sunshine vitamin”, and what to do in clinical practice.

This all being said, incorporating Vitamin D into your life is certainly worth exploring.

5 easy steps to take when considering Vitamin D:
  1. Call your neurologist on Monday morning to set up an appointment
  2. Read the bulletin about Vitamin D and MS (here) - empower yourself with knowledge
  3. Get your blood levels of Vitamin D checked with your neurologist
  4. The blood tests and Vitamin D prescription should be covered by insurance yet it’s worthwhile calling your provider to ensure coverage
  5. Once on a Vitamin D regimen, monitor, monitor, monitor by working closely with your neurologist. She/he will evaluate your blood levels and give guidance on how much Vitamin D to take

Of course, everyone’s case of MS is different so it is very important that you have discussions with your neurologist about how best to incorporate (or not) Vitamin D into your lifestyle. We know more studies are required to truly understand the fact-based benefits of Vitamin D and several researchers, doctors, et al are seriously committed to analyzing this relationship between the “sunshine vitamin” and Multiple Sclerosis.

I hope this post helps you in your journey.

Take care,

Christie


[i] Allen C. Bowling, MD, PhD , “Vitamin D and MS: Implications for Clinical Practice”, Clinical Bulletin via National MS Society

Sunday, March 1, 2015

Now you can have a gorgeous cane and support Multiple Sclerosis awareness!

"Canes for a Cure" from Top and Derby
My friends over at Top and Derby have done it again. They’ve gone ahead and made another gorgeous, design inspired cane. This one is truly special because it is a limited edition Chatfield cane featuring the color of Multiple Sclerosis – Pantone 158 (or, in other words, MS orange!), just in time for the kick off of Multiple Sclerosis Awareness Month that began today. Know what’s even better? These are “canes for a cure” as proceeds from each sale will be supporting research and awareness for Multiple Sclerosis.

These guys are awesome. I just love ‘em.

Here’s the deal with the canes and the launch:
  • Only 200 were made. The Limited Edition Chatfield cane features MS orange (Pantone 158) with custom packaging and laser engraving. The same comfort, stability, and design of the original Chatfield still applies! 
  • Buying the limited edition cane supports their “enable” mission promoting “canes for a cure” as the tag-line in an effort to raise money for MS awareness and research. Proceeds from the sale of each cane will go directly to the MS societies in Canada and the US. Top and Derby already issued a press release covering this (here) and have really stepped up in this awareness campaign.

Let’s come together to get the media talking about Multiple Sclerosis, educate the general public about MS, and raise some money for the cause. These are the main reasons that Top and Derby created the limited edition cane in MS orange.  Many people who have purchased their lovely canes live with Multiple Sclerosis and this is their way of giving back, showing support, and spreading the love. As Matt, the Creative Director over at Top and Derby, says in the press release, “…launching the cane is the least we could do to support those who’ve supported us.” Hugs Matt!

The canes are now available on Top and Derby’s site (here). They include a sizing chart feature to ensure a proper fit. Measure twice, order once!

And, please share some photos if you end up buying one! I’d love to see you strutting around town with your new orange cane. I will do the same and will post images soon. Feel free to share photos on Twitter, Facebook, and/or Instagram using the hashtag #canesforacure

Thanks and be well.

Christie

Saturday, February 28, 2015

Orange is the new black via the #Orange4MSF campaign

Multiple Sclerosis Awareness month kicks off on March 1 and there is no shortage of awareness campaigns out there. The first one that caught my eye is the #Orange4MSF campaign which invites everyone to take a selfie with an orange. Why an orange? Orange is the official color of Multiple Sclerosis awareness and we’re really amped to make orange the new pink, the new black.

The Multiple Sclerosis Foundation (MSF) launched this fun effort and its main mission is to spread the word about Multiple Sclerosis, educating the public and building hope for those living with this often debilitating and complicated neurological disease.  We all hope that the campaign goes viral as social media channels explode with this important message.

And, you can help! Show your support by snapping a selfie with an orange and then sharing it on Facebook, Twitter, and Instagram. Be sure to use the hashtags #Orange4MSF and #4MSF in your posts. Let’s build hope and let’s educate.

Mine’s coming soon so stay tuned!

Take care and be well,
Christie

For more information, check out these sources:

Sunday, February 15, 2015

If I can bicycle, I bicycle


Cycling is something that brings me pure joy and helps me forget that, if even for a few moments, that I am someone living with Multiple Sclerosis. For me, that can be one of the greatest benefits  – not to be consumed by life with a chronic illness as I fly by the ocean waves, pedaling as hard as I can, on my bicycle. It is pure happiness.

Certainly there are days when I cannot ride, those days when the fatigue kicks in full blast. I simply rest through these moments, reminding myself that tomorrow is a new day and on that new day, if I can bicycle, I bicycle.

Take care,
Christie

Thursday, February 5, 2015

iConquerMS™: Our Voices. Our Data. Our Power.

Hey everyone -

iConquerMS has been hitting the national scene and invites you to participate in this incredibly important research project. If you want more information, there is a great (and free!) webinar coming up on February 9th that explains it all. Hope to "see" you there.

Check it out:
On Monday, February 9, 2015 at 2:30 PM EST, Robert McBurney, PhD, President and CEO of the Accelerated Cure Project for MS and the Principal Investigator for iConquerMS™, and Laura Kolaczkowski, the Lead Patient Representative for the initiative, will talk about iConquerMS™ and what it means for the MS community. To sign up, register here.

In the meanwhile, here is a video that highlights how important our voice is, how important our data is, and how important our power is in our journey to fight Multiple Sclerosis and to eventually land on that cure. And, in the event that you'd like to read more about iConquerMS, check it out here.



iConquerMS - Our Voices. Our Data. Our Power.

Best to you always,
Christie

Wednesday, January 7, 2015

Just for fun on a (somewhat) wordless wednesday

© The Graphics Fairy 2007

Nothing compares to the simple pleasure of a bike ride.
John F Kennedy







Cheers to more bike rides in 2015! 

Happy New Year friends.

Best always,
Christie

Sunday, January 4, 2015

9 cool things that happened in 2014 for treatment and prevention of MS

I am not a doctor nor do I play one on TV. Before trying anything listed below, please consult with your physician or neurologist. Further, this recap is based on info I gathered from exploring other websites including the National Multiple Sclerosis Society’s “Strides Made in 2014 Toward a World Free of MS” published early last month. Be sure to check it out in its entirety because the list of accomplishments is long – hurray for our fight against MS! 

2014 was a pretty great year for those of us living with Multiple Sclerosis. So many amazing things happened in our journey towards treatment and prevention of the disease. We’ve got more drug therapy options, saw great studies come out on myelin repair, identified risk factors for developing MS, and even learned that dance therapy may help those of us living with Multiple Sclerosis.

Without further ado here are 9 pretty cool (and important) things that happened in 2014 for treatment and prevention of MS:

There are now 12 disease-modifying treatment options for those living with RRMS. This is up from 10 options about a year ago. The FDA approved Plegridy and Lemtrada in 2014. This is pretty remarkable because it was not long ago when the choices were so few. Plegridy is injected under the skin every two weeks and designed to lengthen the effect of interferon. Lemtrada is a bi-annual infusion option for those seeking therapy after other MS drugs did not reach desired results. Oh, and the FDA also approved a new and improved Copaxone allowing MSers to inject three times a week vs. every single day. That’s a pretty big win.

Infusing with one of the 12
DMTs now available to
MSers - Tysabri
Statins show promise in slowing brain atrophy in those living with SPMS. Based on trials, this cholesterol-fighting drug slowed the rate of brain atrophy by 43% vs. placebo over a two-year period. Fingers crossed that more studies like this continue and help those living with SPMS.

Smoking continues to be bad for MS health. Building on other studies, researchers in the U.K. found that for every year since quitting smoking, the risk for MS progression reduced 5% (for those living with MS). So glad I quit smoking those many years ago. Cheers to that!

The sunshine vitamin continues to help those living with MS. An international study helped show that analyzing Vitamin D serum levels in early MS may help predict future disease activity and progression. And, those in the study with higher levels of Vitamin D had reduced disease activity and progression vs. those with lower levels. On a personal note, I am on a Vitamin D program prescribed by my neurologist as he feels my levels are too low. Wish me luck for improvement!

There may be something to cod liver oil, too. Studies show that those who took cod liver oil, a source of Vitamin D, during the ages of 13-18 had 50% reduced risk of developing MS (vs. those who never took it or took it at other ages).
Did you know the sunshine
vitamin may help in predicting future
disease activity and progression? 

Researchers continue to explore ways to repair damaged nervous systems. Very smart people all over the world continue to analyze compounds, antibodies, stem cells, molecules, and other elements to find ways to repair myelin damage. Check out the NMSS site linked (here) for more info on these important studies.

Our health data has power! iConquerMS.org is now live and is putting MSers at the center of research in our fight against MS. This is an incredible project that will use health data to help those living with Multiple Sclerosis and to find that eventual cure. Check it out (here).

Taking up Salsa lessons may help MSers. Studies show that the Salsa dance form helps with gait and balance issues for those of us living with Multiple Sclerosis.  Larger studies are being developed now to see how dance can be incorporated into physical therapy programs for MSers. Everybody Salsa!

Biogen hands out Fitbits to some living with Multiple Sclerosis. Biogen hopes get useful data about the progression of the disease and lead to better treatments. To do so, they gave out 250 Fitbit bands to MSers and will analyze mobility and sleep patterns. Read more about it (here).

The list of accomplishments, trends, and other important elements from 2014 is much, much longer than what’s listed above. Please be sure to check out the resources featured at the bottom of this page for more information about everything that is being done for treatment and prevention of MS.

I hope the new year is good for you and yours.

Best always,
Christie

Sources:
“Multiple Sclerosis Year in Review”, Neurology Advisor, 2014 http://www.neurologyadvisor.com/multiple-sclerosis-year-in-review/slideshow/2349/#1
“Strides Made in 2014 Toward a World Free of MS”, National Multiple Sclerosis Society, December 9, 2014 http://www.nationalmssociety.org/About-the-Society/News/Strides-Made-in-2014-Toward-a-World-Free-of-MS

Wednesday, December 10, 2014

I'm conquering MS, 'wanna join me?

From time to time groundbreaking stuff happens on the planet that gets us really jazzed up and the launch of iConquerMS.org is no exception. As someone who lives with Multiple Sclerosis, this project is so very near and dear to my heart and I am super proud to be part of iConquerMS team and watch this go live.
So, you might be wondering, “Who/what exactly is iConquerMS.org?”

iConquer MS.org is a patient driven initiative that focuses on using ‘big data’ in the form of research suggestions and health data, to tackle all kinds of issues important to the MS community, including finding that cure.

Via an online portal, MSers will register, contribute information, and suggest ideas for research. Researchers will then review the idea, analyze the data, and gain important insights on varying aspects of Multiple Sclerosis. This MSer: Researcher collaboration may lead to better diagnostic procedures, treatment recommendations, and the ultimate goals of preventions and cures.

Yes! Throw confetti in the air!


After spending some time with the iConquerMS.org team, doing a bit of beta testing on the site, and registering myself, I am getting more and more excited about this project. Here’s why:
  • iConquerMS.org is driven by folks living with Multiple Sclerosis. Yep, we’re steering the MS research ship. iConquerMS.org is an initiative by and for folks like us, living with MS, who truly understand the unique needs of MSers and want to contribute ideas and health data to fuel research. I love this because it’s patient driven, not a bunch of folks wearing goggles and white lab coats while holding test tubes in a back room laboratory, as my friend Stephanie Butler would say. 
  • iConquerMS.org will really focus on the MS issues that matter most to us because research questions will be raised by the MS community. These questions may include: what causes the disease and what strategies might prevent it, cure it, or slow its progression; which treatments work best in which individuals; what factors affect the progression of the disease; and what insights can be found to enable new and more effective treatments to be developed. Yes! More confetti in the air!
  • Things may actually move along faster. Advances in research may occur sooner as MSrs play a more active role by facilitating the use of our most personal asset – our own data, including lifestyle habits and health histories.

Please join us in this new way to fight MS. Let’s speed things up. Let’s use “big data” to truly make an impact. Let’s work closely with researchers to get closer to what matters most to us. Let’s work together on this important journey.

Simply go to https://iconquerms.org and click the “join now” button.

By the way, this amazing project is backed by all kinds of respected groups including: National MS Society (NMSS), and the Multiple Sclerosis Association of America (MSAA). And, Accelerated Cure Project for MS (ACP), Feinstein Kean Healthcare, and Arizona State University, and Patient Powered Research Network. Pretty hefty support.

Take care,
Christie

Sunday, November 16, 2014

Walking around in style with my Top & Derby walking stick

Who says assistive devices have to be drab, ugly, and without color? Not me. And two award winning companies agree: meet Omhu and Top and Derby who infuse the mobility sector with color, design, and cool looking walking sticks. I jotted up a post a while ago about Omhu. They bring us totally rad canes, made from natural wood and high-strength bicycle-grade aluminum materials, in six gorgeous colors. Our friends over at Top and Derby make a great cane, too, and I think you’ll agree that this is a really nice departure from the usual cold and clinical ones.

Check it out.

Top and Derby feel like “…no one should be walking around with a gnarly looking cane…” and, thus, the entrepreneur, innovator, and designer collaboration of Matthew Kroeker, Gerrit de Vries, and Ben Grynol created their debut, the Chatfield cane. It’s both gorgeous and extremely functional.

The design and materials of Top and Derby’s cane are pretty amazing

To start with, the Chatfield has a distinct and intuitive handle, beautiful solid walnut shaft, and sneaker inspired tip (or, as they like to call it, shoe, since it’s a bit like a sneaker sole). Top and Derby do not skimp on quality either. The Chatfield handle is aluminum coated with silicon so your hand doesn’t slip while gripping and it totally absorbs vibrations while you walk. The solid walnut shaft is coated with a durable satin finish, and the shoe? It’s made of a durable thermoplastic rubber material. To top it off, it comes in three colors, all perfectly complimentary to the walnut and you’ll love their descriptions: Lights-out Black, Crybaby Blue, and On-the-vine Red.

"The Chatfield" arrives - thanks Top and Derby!
(c) cgermans photography 2014

I just bought a Chatfield cane and chose On-the-vine Red. It’s pretty sweet. I ventured out with it for the first time during a recent excursion around the coastal, walled city of Dubrovnik and the gorgeous island of Split, Croatia. What fun I had walking around as a wide-eyed tourist with a bit more support. Minus the lady who kicked the cane out from under me while we crowded outside at the airport terminal. Ha, ha! I’ve since forgiven her.

Yet, for me, using a cane is a vulnerable move

Buying the Chatfield was fun and easy (see aforementioned design shout outs and easy-to-use shopping site linked below) yet mustering up the courage to actually walk around with a cane is an entirely different story. It’s extremely personal. For me, using a cane releases some of the denial that’s been buried deep down for a while. The last time I used a cane was during a trip to Portland three years ago. I’ve since rested said cane against the wall and left it there. I haven’t wanted to admit that I need help. You know this denial I speak of, right? When you gasp, “oh crap, I cannot walk long distances without difficulty and really do realize that a cane will help and improve my life but I cannot muster up the courage to walk around town with a cane because what will people think and what if I see someone I know and then I’m exposed and then what?” the realization becomes all so real. I thought I was better than this.

The chances of seeing someone I knew while visiting Croatia, however, were pretty slim so I felt it was a good testing ground for me to try out the Chatfield. It was great! Super sturdy, very comfortable, and easy to use. With my Top and Derby cane in hand, I be-bopped along the stoned streets of Split, where Roman emperor Diocletian retired, walked the city walls of Dubrovnik while trying to catch glimpses of Game of Thrones filming (we saw Tommen!), and climbed seemingly thousands of steps as Dubrovnik is a very hilly town indeed. The Chatfield was my friend during these walks and gave me the support I needed.

Me and my Top and Derby "The Chatfield" while on holiday in Croatia
(c) cgermans photography 2014

Practice to progress

Using a cane is not a natural move for me, however, as I have the tendency to walk very quickly and without much focus. It took a bit of time getting used to but after walking more deliberately and slowing things down a bit, I grew to like the cane as it gave me the relief I needed. I felt empowered and so much happier because I was actually reserving energy by making it easier to walk. Except for those brief occasions when I accidentally kicked the cane in the same way as that lady at the airport. Gotta watch out for that. With less weight on my bad leg, I found I could walk more easily and more happily yet with cane in tow, I had to juggle other things like my camera bag, ice cream cones, and shopping bags and so I found it frustrating to only have one free hand. I did get somewhat used to it, though, and especially enjoyed having it with me as we approached very large tourist groups. It’s amazing how folks hop out of the way when they see someone walking towards them with an assistive device. Outta my way everyone!

So, with that, I wrap this up with a promise. I promise to practice to progress using a cane when walking longer distances. And, while we are certainly not happy to live with disability we may as well walk around with a bit of style. Agree?  What's been your experience with adapting to an assistive device? Any cool walking sticks out there that you like and would like to share with others? We'd love to hear from you. 

Cheers!

Christie

Check out the Top and Derby and Omhu products here:
Top & Derby: http://www.topandderby.com

Tip: definitely follow their sizing charts, as you want to be sure you are properly fitted for your new cane.

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