It’s hard living with a diagnosis of Multiple Sclerosis and even harder deciphering when to “come out” - who to tell, how and when. For me, telling my loved ones is easy and I’m very fortunate as I’ve read stories about how many MSers struggle with this, not getting the right level of emotional and physical support from friends and family. I feel lucky.
At work, however, I do not talk about my life with MS. So I’ve chosen to live a double life. By day, I work in an office (think Dilbert) amongst colleagues who do not know about my health status. By night, I live with MS amongst those who love and support me.
It is exhausting being a secret agent. Hiding out in empty cubicles to make phone calls to my neurologist and discreetly leaving early for infusion, MRI and doctor appointments can be super difficult to cover up but I have chosen to hide my mission: do not reveal the MS diagnosis at work.
Read more about how challenging it can be to ensure my cover isn’t blown on Multiple Sclerosis.net. How has coming out with your diagnosis been with your friends and family? Work? Or, do you live a double life like I do?