Saturday, February 28, 2015

Orange is the new black via the #Orange4MSF campaign

Multiple Sclerosis Awareness month kicks off on March 1 and there is no shortage of awareness campaigns out there. The first one that caught my eye is the #Orange4MSF campaign which invites everyone to take a selfie with an orange. Why an orange? Orange is the official color of Multiple Sclerosis awareness and we’re really amped to make orange the new pink, the new black.

The Multiple Sclerosis Foundation (MSF) launched this fun effort and its main mission is to spread the word about Multiple Sclerosis, educating the public and building hope for those living with this often debilitating and complicated neurological disease.  We all hope that the campaign goes viral as social media channels explode with this important message.

And, you can help! Show your support by snapping a selfie with an orange and then sharing it on Facebook, Twitter, and Instagram. Be sure to use the hashtags #Orange4MSF and #4MSF in your posts. Let’s build hope and let’s educate.

Mine’s coming soon so stay tuned!

Take care and be well,

For more information, check out these sources:

Sunday, February 15, 2015

If I can bicycle, I bicycle

Cycling is something that brings me pure joy and helps me forget that, if even for a few moments, that I am someone living with Multiple Sclerosis. For me, that can be one of the greatest benefits  – not to be consumed by life with a chronic illness as I fly by the ocean waves, pedaling as hard as I can, on my bicycle. It is pure happiness.

Certainly there are days when I cannot ride, those days when the fatigue kicks in full blast. I simply rest through these moments, reminding myself that tomorrow is a new day and on that new day, if I can bicycle, I bicycle.

Take care,

Thursday, February 5, 2015

iConquerMS™: Our Voices. Our Data. Our Power.

Hey everyone -

iConquerMS has been hitting the national scene and invites you to participate in this incredibly important research project. If you want more information, there is a great (and free!) webinar coming up on February 9th that explains it all. Hope to "see" you there.

Check it out:
On Monday, February 9, 2015 at 2:30 PM EST, Robert McBurney, PhD, President and CEO of the Accelerated Cure Project for MS and the Principal Investigator for iConquerMS™, and Laura Kolaczkowski, the Lead Patient Representative for the initiative, will talk about iConquerMS™ and what it means for the MS community. To sign up, register here.

In the meanwhile, here is a video that highlights how important our voice is, how important our data is, and how important our power is in our journey to fight Multiple Sclerosis and to eventually land on that cure. And, in the event that you'd like to read more about iConquerMS, check it out here.

iConquerMS - Our Voices. Our Data. Our Power.

Best to you always,

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